Ability Centre, Carmondean, Livingston EH54 8PT
The Ability Centre offers both a centre-based and outreach service to adults aged between 16 and 65 who have a physical disability. They provide 15 places each day in the centre and facilitate 12 outreach groups located throughout West Lothian within local community facilities.
Each client has an individual programme to meet their agreed needs, which is regularly reviewed and a moving plan is agreed with each individual prior to leaving the service.
A variety of occupational, educational and therapeutic opportunities are available daily within the Ability Centre and each Outreach Group determines their own programme. Work experience opportunities are offered on the reception desk and the cafe checkout. Other pre-employment skill preparation and support is offered through the B4 and On2 Work schemes. These schemes work in close collaboration with the Department of Work and Pensions to ensure that nobody is financially disadvantaged through taking up an employment opportunity.
Through the brokerage service, individuals are supported to try a range of educational, leisure or volunteering opportunities in their own local communities.
25 Ann Street, Edinburgh EH4 1PL
Brain Tumour Action aim is to support people affected by brain tumours, whether directly or indirectly, and to improve treatments through training and research. Ultimately, they look to the day when brain tumours become a controllable, or curable, condition for everyone. They run support groups and produce a range of information leaflets and booklets as well as running a telephone helpline.
St Margaret’s House (Room 4.25), 151 London Road, Edinburgh, EH7 6AE
Care for Carers is a voluntary organisation which provide support services to all carers, regardless of age, gender, disability or relationship of the person they care for.
They deliver services to carers in Edinburgh and deliver specific short breaks through their Stepping Out service to carers from across Scotland.
The aims of the organisation are to :
Care for Carers runs a number of support groups and meetings for carers on a regular basis.
The groups are :
Portobello Carers Support Group
Evening Carer Support Group
Family & Friends Carer Support Group
A number of focus groups may be held over the year, please check the newsletter for details.
Sycamore House, Quarrywood Court, Livingston EH54 6AX
A well-established local third sector organisation offering a range of services to support unpaid carers, young carers and people with disabilities in West Lothian.
Carers of West Lothian provide information, advice and support to unpaid carers and young carers (aged 8-18) supporting a family member, friend or neighbour due to illness, disability, frailty, mental ill health and addiction, and information, advice and support to people with a physical or learning disability.
Support staff can provide emotional and practical support as well as a listening ear and signpost to other organisations.
Some of the ways they can provide support:
Almondbank Centre, Shiel Walk, Livingston EH54 5EH
West Lothian CAB provide free, confidential, impartial and independent advice to anyone who needs it.
The Bureau provides advice on a wide range of subjects, including:
23 Dalmeny Street, Edinburgh EH6 8PG
Citizens Advice Edinburgh provides free, confidential, independent and impartial advice on a variety of issues. Citizens Advice Edinburgh has five bureaux and 25 outreach points across Edinburgh.
The five bureaux can be found at the following locations:
Strathbrock Partnership Centre, 189A West Main Street, Boxburn, West Lothian EH52 5LH
CRABIS provides multi-disciplinary assessment and rehabilitation within the home or community setting to individuals over the age of 16 who live in West Lothian and who have a physical disability and/or acquired brain injury. The service also provides follow up and early intervention as required to individuals who have suffered a mild head injury. They must also have a diagnosed neurological condition.
The service’s core aim is to improve the individual’s independence, level of function, participation and quality of life.
CRABIS is funded by Lothian Health and West Lothian Council and the service is delivered by an experienced, multi-disciplinary team, including:
Causewayside House, 160 Causewayside, Edinburgh EH9 1PR
Digby Brown is Scotland’s largest personal injury practice. From our seven offices in Edinburgh, Glasgow, Dundee, Kirkcaldy, Inverness, Aberdeen and Ayr, we cover the length and breadth of the country. Our expertise in personal injury law, particularly in the fields of serious head and spinal injury is widely acknowledged. Digby Brown is ranked Band 1 for Personal Injury in Scotland by Chambers Guide to the UK Legal Profession and Legal 500.
In cases of traumatic brain injury a specialist solicitor is vital. Seeking rightful and fair compensation after the accident is just one aspect of the package of measures which needs to be considered and implemented to try and ensure that the process of rehabilitation and adjustment can start.
We can immediately provide advice and support on statutory benefits and how to access local authority social services through our in-house welfare rights service. We can make a real difference by arranging private rehabilitation, by assessing housing needs and, most importantly, implementation of care and case management regimes where required.
Edinburgh Office - 525 Ferry Road, Edinburgh EH5 2FF
West Lothian Office - 28 Heatherbank, Ladywell, Livingston EH54 6EE
EARS is an independent advocacy service for people in the Edinburgh and the Lothians in the following circumstances:
The purpose of EARS is to provide independent advocacy, which will:
9-11 Lodge Street, Haddington, East Lothian EH41 3DX
East Lothian Works (ELWs) in East Lothian Council’s free supported employment service.
ELWs helps people with physical, learning, sensory or mental health disabilities to prepare for, find and keep a job.
ELWs also provides support and advice to both employees and employers, who are experiencing disability related difficulties to help retain people in their current job. The service is available free of charge to East Lothian residents aged 20 and above.
They work in partnership with Into Work - Norton Park, 57 Albion Road, Edinburgh, 0131 475 2600, who have an acquired brain injury, supported employment team.
14 Links Place, Edinburgh EH6 7EZ
The Edinburgh Carers Council (ECC) provides an independent advocacy service to unpaid/family carers of adults (18yrs or older) with mental health difficulties (including head injury).
Advocacy is about having somebody to represent your needs and views as effectively as possible. An advocacy worker will support and work with you on specific issues and try to get them resolved.
ECC’s services help carers access the support and information they need and provide opportunities for carers to be involved in collective advocacy. Carers can work together to bring about change and raise awareness of issues which affect them. Through collective advocacy carers can be involved in all stages of the planning of mental health services. They can also share their experiences, exchange information and take action as a group.
ECC promote collective advocacy by bringing together carers from Edinburgh and the Lothians at our Carers Forum which meets bi-monthly and is led by carers.
Edinburgh Community and Rehabilitation Support Service, 62 Longstone Street, EH14 2DA
The Edinburgh Community Stroke Service (ECSS) aims to provide stroke specific rehabilitation within the community when identified goals still have to be achieved.
ECSS is a multidisciplinary service provided by occupational therapists, physiotherapists, an employment and training advisor and community support workers.
The service has close links to other agencies including speech and language therapists, assistive technology occupational therapy, Chest Heart and Stroke Scotland Nurses, consultant in rehabilitative medicine (community), neuropsychology, Grapevine (welfare checking service), and other statutory/voluntary services.
ECSS can provide rehabilitation input once a week. This can be either community and/or centre based. ECSS is a flexible, personalised service providing 1:1 input or group work as appropriate incorporating health promotion and self management strategies. The duration of ECSS input is time limited depending on individual rehabilitation need and goals.
ECSS is available to adults over 16 years of age living in the City of Edinburgh. To access ECSS you must have a primary diagnosis of stroke and be motivated and able to actively participate in rehabilitation.
Social Care Direct contact 0131 2002324 or email email@example.com
Unit 4, 27 Peffer Place, Edinburgh EH16 4BB
Edinburgh Headway Group aims to empower and enrich the lives of adults who have survived an acquired brain injury. They do this by providing high quality person-centred rehabilitation services which support both adults with brain injuries and their carers:
Rehabilitation: They help people improve their cognitive, physical and emotional abilities to improve their quality of life and help them re-join their communities. Their Day Service provides an important part of their rehabilitation work enriching the quality of life for their service users whose opportunities to get out of their homes may be very restricted and many activities inaccessible.
Support: They offer practical and emotional support to members and their families. Their Carers Project provides support to unpaid carers via social events, peer groups and offers training and information. Their new Brain Injury Carers Support Project supported by the City of Edinburgh Council, also provides a 1:1 service enabling adults with an acquired brain injury to take part in activities in the community with a trained volunteer. This aims to provide valuable respite opportunities to carers who are resident in Edinburgh.
Awareness: They are committed to raising awareness about ABI to the wider public, the media and Parliament. Their external training programme provides Acquired Brain Injury Training to individuals and professionals.
Speakability Self-Help Groups are run by and for people with aphasia - language-loss following stroke, head injury or other neurological condition.
Speakability groups allow people to support each other, share experiences, make new friends, rebuild self-confidence and develop new skills. You will have the opportunity to practise total communication using words, drawing, pictures and gesture. Everyone understands aphasia and encourages each other in our recovery.
Speakability Self-Help Groups raise awareness of aphasia in the local community and raise funds to support our group meetings, activities and outings.
The Edinburgh club meets every third Thursday of the month between 2pm and 4pm at The Cluny Centre, 1 Cluny Drive, Edinburgh EH10 6DN
Please get in touch to check details of meeting dates, times and venue as things do change.
Norton Park, 57 Albion Road, Edinburgh EH7 5QY
Edinburgh Young Carers Project is a voluntary organisation working with and on behalf of young carers throughout Edinburgh. Edinburgh Young Carers mission is to make a positive difference in the lives and futures of young carers through support, information, respite and personal development and training.
Their services and activities include:
48 Govan Road, Glasgow G51 1JL
Epilepsy Scotland provides support and information to the 55,000 people affected by epilepsy in Scotland with the following services:
CodeBase, 38 Castle Terrace, Edinburgh EH3 9DZ
Euan’s Guide makes it easier for disabled people to find great places to go. Euansguide.com is the disabled access review website where disabled people, their family, friends and carers can find and share reviews on the accessibility of places around the UK and beyond. It’s an invaluable tool for everything from planning somewhere to take the kids at the weekend to picking a last minute place for lunch.
We all want to get out there and enjoy life, and having good quality disabled access information inspires confidence and removes fear of the unknown. With good accessibility information being so hard to find, one review is often enough to encourage others to visit. Reviews are also sent to venue owners and this can be a positive and powerful opportunity for education and change.
The charity was founded in 2013 by Euan MacDonald MBE, a powerchair user and his sister Kiki after Euan was diagnosed with Motor Neurone Disease and a lack of disabled access made everyday experiences stressful. By breaking down the barriers of exclusion with the help of other people in the same situation, Euan’s Guide hopes to make the world more accessible one review at a time.
c/o Thistle Foundation, Thistle Centre of Wellbeing, 13 Queen’s Walk,
Edinburgh EH16 4EA
get2gether is a Scottish Incorporated Organisation (SCIO) charity which offers social and friendship opportunities to adults with disabilities in Edinburgh and the Lothians. get2gether was created to respond to the social isolation regularly reported and experienced by people with disabilities who wanted opportunities to find friendship and love in adult relationships.
get2gether arrange social activities for people with disabilities in safe and friendly places in Edinburgh and the Lothians. Their members tell get2gether what they’re interested in - and that’s what they do.
The Bleachingfield Centre, Countess Crescent, Dunbar EH42 1DX.
Headway East Lothian aims to support and improve the quality of life for people in East Lothian with acquired brain injuries, their families and carers. They provide adults with acquired brain injury (ABI), their families and carers opportunities to access advice and information, and resources to help them cope with challenges and remain together as families.
Headway East Lothian encourages members to socialise, support each other and share experiences and advice. This involves regular meetings, activity sessions, social events and outings. They offer access to therapeutic activities and workshops aimed at enhancing physical and mental wellbeing. These include music and arts and crafts activities. They also help members build coping strategies to help deal with financial stresses.
Through a range of activities, Headway East Lothian strive to empower members to manage their own condition and develop confidence in their own abilities. The service is entirely led by members, each with unique experiences of living with ABI, which they can offer to the group.
Ground Floor, Denholm House, Almondvale Business Park, Livingston EH54 6GA
The ILF Scotland 2015 Fund is designed to support individuals who have complex disabilities to live independently. The funding makes a positive difference to the lives of recipients.
The new ILF Scotland Transition Fund provides money, for up to one year, to support young people living with disabilities (as defined in the Equality Act 2010) to improve their lives. This includes autism, learning difficulty, physical disability, mental health (e.g. anxiety or depression) or hearing or visual impairments.
The purpose of the Fund is to help young people, between the ages of 16 and 25 living with disabilities, with the transition after leaving school or children’s services to be more independent and to continue spending time with other people.
Norton Park, 57 Albion Road, Edinburgh EH7 5QY
Intowork is a non-profit organisation for people who would like a job but need support to get one or keep one. The service is for people who live in Edinburgh and the Lothians and have a disability or long-term health condition. They provide help for job seekers and work with employers to help create a diverse work force and untapped talent.
The Acquired Brain Injury Team provide a supported employment service to people with an acquired brain injury seeking to gain employment. Supported employment is widely recognised as a model for successfully integrating people with disabilities into the labour market. Mentoring and peer support can support the transition into employment and enable the new employee to maintain their employment and develop at work.
7 Rutland Court Lane, Edinburgh EH3 8ES
Kindred provides advocacy and information on services available to children with additonal support needs and their carers. Kindred provide a ‘listening ear’.
The organisation welcomes enquiries from parents, carers, professionals and anyone else with an interest in additional support needs.
Kindred do not charge for information and they will call back if contact is made by phone.
Norton Park Centre, 57 Albion Road, Edinburgh EH7 5QY
Lothian Centre for Inclusive Living (LCiL) is a user-led disabled people’s organisation. They work with disabled people, people with long-term conditions and older people, parents and carers. LCiL support people in East Lothian, Midlothian, Edinburgh and West Lothian.
Services are designed and delivered by disabled people and include:
c/o Hibernian Football Club, Easter Road Stadium, South Stand, 12 Albion Road, Edinburgh EH7 5QG
Lothian Disability Sport run a comprehensive sports specific programme which allows approximately 1,500 young people and adults with a disability the opportunity to take part in sport each year.
They aim to promote sport and physical recreation for people with a disability by:
Murdostoun Castle, Newmains, Wishaw ML2 9BY
Murdostoun Brain Injury Rehabilitation and Neurological Care Centre provides rehabilitation, treatment, care and support for adults (18+ years) and adolescents (16-18 years) with a brain injury or other complex neurological conditions.
There are two facilities within the grounds:
111 Balcarres Avenue, Glasgow G12 0QW
The neuro physiotherapists at NeuroPhysio Scotland provide a service in Glasgow, Edinburgh, Perth, Dundee, Aberdeen and Inverness and the surrounding areas. NeuroPhysio Scotland visit patients in their own homes or arrange visits to specialist clinics.
NeuroPhysio Scotland treatments can help people who have a neurological condition achieve their personal goals of maximum fitness, function and quality of life:
Charles Bell Pavilion, Astley Ainslie Hospital, 133 Grange Loan, Edinburgh EH9 2HL
The Acquired Brain Injury rehabilitation service is provided by a multidisciplinary rehabilitation team in a 40 bedded unit at Charles Bell Pavilion. This includes the Scottish Brain Injury Rehabilitation Service (SBIRS) which provides tertiary referral services for patients in those health board regions that do not have local access to inpatient brain injury rehabilitation. The inpatient team includes physiotherapy, occupational therapy, speech therapy and neuropsychology. The unit also provides assessment of Disorders of Consciousness.
Though the service is predominantly targeted at the 16-65 year age group, patients in older age groups, who have similar needs are frequently admitted. In addition to managing patients with traumatic and non-traumatic brain injury, the unit has also developed expertise in inpatient rehabilitation for patients with stroke; progressive neurological disorders; neurological cancers; non-traumatic spinal disorders and polyneuropathies.
The Neurorehabilitation Outpatient Service aims to provide a specialist interdisciplinary neurorehabilitation outpatient service for patients with complex neurological needs and their families. The service aims to provide timely access to specialist, flexible, coordinated and effective interdisciplinary outpatient services for adults with neurological rehabilitation needs within Lothian. Patients may be seen on a 1:1 basis, for joint assessment/treatment or in a group.
The service also provides specialist interventions in the following areas: spasticity management, neurological splinting, functional electrical stimulation, vocational rehabilitation, cognitive assessment and rehabilitation and assessment of motor processing skills. Patients may be seen in clinics, at home, at work or in community settings.
G/1 Links House, 15 Links Place, Edinburgh EH6 7EZ
Partners In Advocacy provides independent advocacy to support people to have their voices heard, their opinions respected and to be empowered to be involved in the important decisions that affect their lives. Partners in Advocacy provide a range of independent advocacy services across Edinburgh, Midlothian and East Lothian. Please refer to their website or contact them for more information about their services in each area.
Penumbra Milestone, 113 Oxgangs Road North, Edinburgh EH14 1EB
Penumbra Milestone is a residential step down unit for people recovering from alcohol-related brain damage. It includes 10 single en-suite bedrooms with private indoor and outdoor space where residents are supported by a team of specialist staff. The unit will provide rehabilitative support to people for up to 12 weeks. At Penumbra Milestone experienced staff will work with you in your recovery to:
Staff will provide residential support 24 hours a day, seven days a week and will ensure that you have the support you require to prepare you to return home.
Who can stay here?
3 Lime Kilns View, Edinburgh EH17 8TS
Positive Inspirations Lead Therapist Rogan Grant is a clinical hypnotherapist who specialises in working with those clients who survived acquired brain injury, those who suffer from post traumatic stress disorder and their support network.
Positive Inspiration is a non profit business, where all proceeds are used to offer free or heavily subsidised treatments for organisations that support ABI and PTSD.
50 Gillespie Crescent, Edinburgh EH10 4JB
Scottish War Blinded give free support to ex servicemen and women who have lost some or all of their sight as a result of a head injury, or for any other reason. They support those who feel their independence has been affected as a result of their sight loss, and help them to regain independence and to feel fulfilled again.
Support can include:
Scottish War Blinded can provide access to the ‘light box’ which is part of Neurological Vision Technology (NVT) to access visual abilities using a non-invasive training package. This can be done at their centre or in veterans’ own environment.
Their rehabilitation team is able to offer the NVT assessment and follow up with training using the light box and subsequent tailored support, to any veteran who has suffered an acquired brain injury, for example strokes, regardless of the cause.
CHSS, Rosebery House, 9 Haymarket Terrace, Edinburgh EH12 5EZ
There are a number of Stroke Support Groups across Edinburgh and the Lothians. They are as individual as the people who run them, reflecting local interests and diversity. The principle of all Community Stroke Groups is to support their members to participate in and enjoy activities in their local community.
These self-managed groups are affiliated to Chest Heart & Stroke Scotland (CHSS) though not provided directly by the charity. CHSS provides dedicated support to the community stroke groups, offering advice and guidance. Details of each group can be found on the CHSS website.
Robert Fergusson Unit, Morningside Terrace, Edinburgh EH10 5HF
The Robert Fergusson Unit is a national NHS neurorehabilitation service for patients (18-65yrs) with significant behavioural and/or other neuropsychiatric sequelae following acquired brain injury.
Referrals can be made to one of medical team (Dr Langrell/Dr Welch/Dr Carson) and a visit to the patient will then be arranged. If, following initial assessment, it is felt that the patient would benefit from a period of assessment and rehabilitation in the unit, then the referring clinician must seek approval from the host Health Board, who will be responsible for funding this.
The Stafford Centre, 103 Broughton Street, Edinburgh EH1 3RZ
The Stafford Centre is a community resource for people experiencing mental health difficulties living in the Edinburgh area. The Centre has various services, groups and even their own radio station.
The Centre operates as a drop-in where people can enjoy the company of others and begin to build supportive networks. The Stafford Centre also has a snack bar and some of the centre users help by volunteering behind the counter.
Floor K, Argyle House, 3 Lady Lawson Street, Edinburgh EH3 9DR
V1P Lothian was designed in collaboration with veterans who were seeking a mental health and well-being service that understood them and met their needs both clinically and for wider support and advice. The team consists of veterans peer support workers, clinicians, therapists and administration team.
They provide ex-forces personnel, families and carers with services and support to address whatever issues may be concerning you. V1P’s aim is to know what call to make and to support you in addressing any issue of concern you may have related to your past service and now living in “Civvy street”.
Open access drop-in centre from Monday to Friday between 1.00pm and 3.30pm.
In addition, V1P Lothian host two national pilot projects – Individual Placement Support needing support into employment and our Criminal Justice Social Work Project that works with the courts to look at supportive options to reduce offending behaviour of veterans should they appear at court.
2 Queens Crescent, Glasgow G4 9BW
Visibility Scotalnd is a charity working across Scotland, delivering a range of holistic services and support to people living with visual impairment. Visibility Scotland supports children and adults to make their own choices and live their lives fully, confidently and independently. At Visibility Scotland we believe that you don’t need sight to have vision!
There are many ways that Visibility Scotland can help, support or advise you or your family member. If your vision has been affected by stroke or head injury, its “Neurosight” project might be able to help.
Edinburgh Carer’s Hub, 60 Leith Walk, Edinburgh EH6 5HB
VOCAL have been supporting unpaid carers in Edinburgh for over 20 years.
Today, through one Edinburgh carer centre and carer support workers based in local communities they continue to provide:
VOCAL Carer Centre, 30/1 Hardengreen Estate, Dalhousie Road, Dalkeith, EH22 3NX
The VOCAL Midlothian carer support team works with unpaid carers to enable them to support their own needs and help with access the support and services they require.
VOCAL also aims to provide carers with social, learning and leisure opportunities to support their caring role or their own wellbeing and interests, and access to breaks from caring through Wee Break Midlothian.
In addition, they offer support to families and friends affected by someone else’s drug or alcohol misuse (Family Support Addictions) and a carer counselling service.
Bathgate Partnership Centre, South Bridge Street, Bathgate EH48 1TS
The Advice Shop is a free, impartial and confidential service to help the people of West Lothian with a focus to alleviate poverty and to promote inclusion and equality through advice, assistance and advocacy. Our fully trained advisors are available to speak to daily from Monday to Friday in the Bathgate Partnership Centre. The Advice Shop also holds regular sessions and roadshows in towns across West Lothian.
Some ways the Advice Shop can help:
1st Floor, The Almondbank Centre, Shiel Walk, Craigshill, Livingston EH54 5EH
West Lothian Drug & Alcohol Service (WLDAS) is a 3rd sector organisation that was set up in 1985 to reduce the harm caused by drugs, alcohol and tobacco to West Lothian residents and communities. They aim to provide easily accessible, confidential and non-discriminatory services to reduce substance misuse related harm to individuals, families and the community.
WLDAS enjoy a good working relationship with the NHS, local authority and voluntary sector providers to ensure the delivery of the highest quality service to those in most need.
They have a professional multi-skilled staff team to deliver a wide range of services which include: